In an attempt to shed light on the topic, researchers from the universities of Toronto, Calgary and British Columbia recently conducted a series of interviews with professional care providers, persons with early-stage dementia, and family caregivers.
Researchers discovered that patients and their families were not on the same page when it came to sharing information.
Here are the findings:
What can you do?
“In such a case, the conflicting values of patients and family must be prioritized,” says Dr. Margaret A. Somerville, Centre for Medicine, Ethics and Law, at McGill University.
She suggests the following:
S. Tracy, et al., (Fall, 2004). To Tell or Not to Tell? Professional and Lay Perspectives on the Disclosure of Personal Health Information in Community-Based Dementia Care. Canadian Journal on Aging, p.203-215.
Somerville, M. A. (Fall, 2004). “Doing Ethics” in the Context of Sharing Patients’ Health Information. Canadian Journal on Aging, p.197-202.